By Adam T. Elegant, Ramiro Montealegre
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15(3): 218-223. September 1999. Summary: This journal article provides health professionals with information on a prospective followup study that investigated short term and long term outcomes in children who had complex regional pain syndrome (CRPS) type I and were treated with exercise therapy. The study population consisted of 103 children with CRPS. Forty-nine of these children were followed for more than 2 years. Most participants received a daily program of 4 hours of aerobic, functionally directed exercises, 1 to 2 hours of hydrotherapy, and desensitization.
Understanding the safeguards that protect patients can ease some of these fears. Before a clinical trial begins, researchers must get approval from their hospital’s Institutional Review Board (IRB), an advisory group that makes sure a clinical trial is designed to protect patient safety. During a clinical trial, doctors will closely watch you to see if the treatment is working and if you are experiencing any side effects. All the results are carefully recorded and reviewed. In many cases, experts from the Data and Safety Monitoring Committee carefully monitor each clinical trial and can recommend that a study be stopped at any time.
Therefore, finding a physician that can work with your unique situation is a very important aspect of your care. In this chapter, we direct you to resources that can help you find patient organizations and medical specialists. We begin by describing how to find associations and peer groups that can help you better understand and cope with reflex sympathetic dystrophy syndrome. The chapter ends with a discussion on how to find a doctor that is right for you. 9 You may have fears or feel overwhelmed by your situation.
